Independent Organizations

Mr. Chris Blair, President
Hemophilia and Bleeding Disorders Of Alabama
11993 Grandview Drive
Northport, AL 35475
205-339-0245 (Phone)
205-339-0235 (Fax)
Email: cblair@hbda.us
http://www.hbda.us

Ms. Louise Cobb, BSW, MAT, Program Director
Alaska Hemophilia Association & Treatment Center
16958 N. Eagle River Loop
Eagle River, AK 99577
907-622-4045 or 888-909-4045 (Phone)
907-622-4038 (Fax)
Email: akhemo@aol.com
http://www.alaskahemophilia.com

Mr. Val Bias, Executive Director
Hemophilia Council of California
1507 21st Street, Suite 206
Sacramento, CA 95814
916-448-7444 (Phone)
916-448-0219 (Fax)
Email: hccaids@aol.com

Mr. Chad Stevens, President
Snake River Hemophilia & Bleeding Disorders Association
P. O. Box 203
Newdale, ID 83436
208-458-9884 (Phone)
Email: chad@srhbda.org
http://www.srhbda.org

Ms. Kari Atkinson, President
Hemophilia of Iowa, Inc.
58 North 5th Street or PO Box 415
Central City, IA 52214
319-438-1249 (Phone)
319-721-3964 (Fax)
Email: caklatkinson@aol.com
http://www.hemophiliaofiowa.com

Ms. Laureen A. Kelley, President
LA Kelley Communications
65 Central Avenue
Georgetown, MA 01833
978-352-7657 or 800-249-7977 (Phone)
978-352-6254 (Fax)
Email: info@kelleycom.com
http://www.kelleycom.com

Ms. Emma Miller, Executive Director
Hemophilia Foundation of Maryland, Inc.
13 Class Court, Suite 200
410-661-2307 or 800-964-3132 (Phone)
410-661-2308 (Fax)
Baltimore, MD 21234
http://www.hfmonline.org

Mr. Dan Boles, President
Midwest Hemophilia Association
P. O. Box 412866
Kansas City, MO 64141
913-551-7176 or 800-431-7960 (Phone)
816-587-2191 (Fax)
Email: info@midwest-hemophilia.org
http://www.midwest-hemophilia.org

Ms. Renee M. Weaver, CST, President
The Touch Factor Foundation
Butte, MT 59701
406-490-4980 (Phone)
Email: rmw@bmi.net
http://www.touchfactor.org

Ms. Rita Shepherd, President
Heartland Hemophilia Association
P. O. Box 19304
Omaha, NE 68119
402-455-0691 (Phone)
Email: shepherd7721@cox.net
http://www.heartlandhemophilia.org

Mr. Joe Caronna, President
Inalex Communications
38 East Ridgewood Avenue, #244
Ridgewood, NJ 07450
866-802-0304 (Phone)
Email: joe_caronna@inalex.com
http://www.inalex.com

Mr. Jon Davis, President
Bleeding Disorders Association
Of Southern Tier
P. O. Box 538
Binghamton, NY 13902
607-761-1665 (Phone)

 

 

Ms. Audrey Benenati, Executive Director
Central New York (CNY) Bleeding & Clotting Disorders Foundation
9103 Cirrus Court
Manlius, NY 13104
315-481-9698 (Phone)
Email: cnybleeders@aim.com
http://www.cnybleeders.8m.com

Mr. Thom Harrington, Executive Director
Hemophilia Association of New York, Inc.
104 East 40th Street, Suite 506
New York, NY 10016
212-682-5510 (Phone)
212-983-1114 (Fax)
Email: hany@bestweb.net
http://www.hemophilia-newyork.org

Mr. John Taylor, Chairman
The Coalition for Hemophilia B, Inc.
225 West 34th Street, Suite 710
New York, NY 10122
212-554-6898 (Phone)
212-254-6906 (Fax)
Email: info@coalitionforhemophiliab.org
http://coalitionforhemophiliab.org

Ms. Kristine A. Richardson, President
The Hemophilia Connection
P. O. Box 287
Vernon, NY 13476
315-796-4536 (Phone)
Email: info@hemophiliaconnection.org
http://wwwhemophiliaconnection.org

Ms. Teresa Bridges, President
FAMOHIO, Inc.
66 East Lynne Street
Columbus, OH 43215
Email: info@famohio.org
http://www.famohio.org

Ms. Linda Charles, President
Hemophilia Foundation of Oregon
5319 SW Westgate Drive, Suite 126
Portland, OR 97221
503-297-7207 (Phone)
503-297-0127 (Fax)
Email: hfo@easystreet.com
http://www.hfo.info

Mr. Johnny Marquez, Presidente
Asociacion Puertorriquen's de Hemofilia
P. O. Box 51488
Toa Baja, PR 00950-1488
787-632-8830 (Phone)
787-765-2135 (Fax)
Email: nijota7472004@yahoo.com

Ms. Nancy Olson
Brandywine Valley Hemophilia Foundation
514 Beechwood Drive
Kennet Square, PA 19348-1804
610-388-1488 (Phone)

Ms. Anne Kelly, Executive Director
HEDGE
P. O. Box 1575
Plains, PA 18705
866-77-HEDGE (Phone)
Email: graniagirl@aol.com

Ms. Sue Gaerttner, President
Hemophilia and von Willebrand Education Network (HAVEN)
P. O. Box 9243
Erie, PA 16505-8243
814-873-1618 (Phone)
Email: haven8361@yahoo.com

Ms. Lidia A. Grande, Executive Director
Rhode Island Hemophilia Foundation
160 Plainfield Street, Suite 2
Providence, RI 02909
401-944-6950 (Phone)
401-944- 4161 (Fax)

Ms. Yolanda Ortiz, President
Hemophilia Outreach of El Paso
915-859-7992 (Phone)
Email: Yolanda-ortiz@sbcglobal.net
http://www.hemophiliaoutreachofelpaso.com

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