The PACT Workshop and the PACT Foundation Grants are two exciting services that are available to other chapters/associations throughout the country.

PACT Grant Program

The rapidly changing marketplace has raised questions about the future of hemophilia care delivery, and patient access to the full range of needed products and services, including access to the appropriate specialty providers who offer them. The challenge is to preserve policies and programs that ensure patient access.

In 2005 Shire agreed to fund a pilot program which would support state advocacy initiatives that are geared toward maintaining and/or expanding access to high quality care for persons with hemophilia. To date 92 grants have been awarded, totaling over $2 million.

Click this link to apply for your chapter/association project.
Maximum funding request: $25,000

** Please note, deadline date is September 29, 2017


2018 PACT Foundation Grant Winners

  • Hemophilia Council of California
  • New England Hemophilia Association
  • Hemophilia Foundation of Michigan
  • Hemophilia Foundation of Minnesota/Dakotas
  • Ohio Bleeding Disorders Council
  • Eastern Pennsylvania Chapter of NHF
  • Virginia Hemophilia Foundation/Hemophilia of the Capital Area
  • Bleeding Disorders Foundation of Washington

PACT Workshop Program
November 28th & 29th at the Heldrich Hotel in New Brunswick

The Partnership for Advocacy and Communications Training (PACT) workshop is a one and a half day advocacy workshop, which provides organizational development, education and enhanced advocacy skills to state hemophilia chapters and associations.

The workshop includes a combination of outside speakers from state government and private institutions as well as peer-to-peer education.