DID YOU KNOW. . . .
- Women can and do have bleeding disorders
- It is suspected that 1%-3% of the population has von Willebrand Disease or some other form of factor and/or platelet deficiency.
- At this time the major bleeding disorders in women are:
- von Willebrand Disease
- Single Factor Deficiency
- Platelet Disorders
- Carrier (symptomatic or asymptomatic) for Hemophilia A or B
- Approximately 600,000 hysterectomies are performed annually in the United States. Some may have been performed for undiagnosed bleeding causes.
- Women with von Willebrand disease, platelet disorders, single factor deficiencies and symptomatic hemophilia carrier status oftentimes have more complications (with menstruation cycles and childbirth) and deal more with quality of life issues than male counterparts with the same disorders (remember, we are not talking Hemophilia A or B), even in mild levels, due to gynecological issues.
DO YOU . . . . . .
- Bruise easily
- Have heavy or prolonged menstrual periods
- Suffer frequent or prolonged nosebleeds
- Continue with prolonged bleeding after injury, surgery, childbirth, or dental work
- Have other family members with any of the above
If your answer is YES to one or more of the above, . . . . You MAY have a BLEEDING DISORDER!!
YOU CAN BE HELPED . . . . .
- At a federal/state recognized HEMOPHILIA TREATMENT CENTER (see website listing)
- Through personal and/or family history
- With specialized blood tests
These services are all provided at the Hemophilia Treatment Center.
YOU CAN BE TREATED . . . . .
After diagnosis and discussion with the Hemophilia Treatment Center physician and staff, a treatment regimen appropriate and specific to your needs will be discussed with you and implemented through your bleeding disorder treating physician.
FOR MORE INFORMATION. . . . .
- Call, fax, or e-mail us (the Hemophilia Association of New Jersey)-- addresses and numbers are listed on website page
- Call one of the Hemophilia Treatment Centers listed on website page
- Contact National Hemophilia Foundation's HANDI at 1-800-43-HANDI
- Connect with additional website links listed on website page.
PLEASE NOTE . . . . .
For pamphlet and article information, please send us a request by call, fax, or e-mail; include your home or business address so we can mail you the appropriate materials.
TELL US . . . . .
- If you want to be added to HANJ's informational mailing list
- If you would like to become a member of the Women with Bleeding Disorders Committee
The Governor's Task Force on Women with Bleeding Disorders
This Task Force, under the chair of Parvin Saidi, M.D., has successfully completed phase I of their historical mission. Governor James McGreevy issued an Executive Order in March, 2003 to study the prevalence of bleeding disorders (primarily undiagnosed bleeding disorders) in women and asked for recommendations on treatment options available; complications of the disorders, particularly when left undiagnosed or improperly treated; and steps needed to educate the general public and medical community servicing these women. The final recommendations were submitted in a comprehensive report and signed by Governor Corzine in 2007.
The Hemophilia Association in collaboration with New Jersey's Hemophilia Treatment Centers and the New Jersey Department of Health and Senior Services has designed a premier document that can serve as a blueprint for other states. It has raised the status of women's unmet medical needs within the bleeding disorders community to a complete guide for diagnosis, evaluation, care and treatment.
Phase II has already begun. The Task Force is in the process of designing programs that will implement the recommendations sanctioned by Governor Corzine. It promises to be an exciting and eventful year.
Click here for a copy of the Governor's Task Force final report. [PDF]