Advocacy is at the heart of the Hemophilia Association of New Jersey’s mission.

HANJ works to educate elected officials and key stakeholders about hemophilia and other inherited bleeding disorders. With a long history of pioneering state legislative advocacy, HANJ continues to lead efforts that improve access to care and support the needs of the community.

Each year, HANJ participates in the National Bleeding Disorders Foundation’s Washington Days and  hosts the annual Partnership for Advocacy and Communications Training (PACT) Workshop.

Advocacy takes many forms throughout the year, and there are numerous ways for community members to get involved, including:

• Writing letters to elected officials regarding proposed laws or regulations.
• Meeting with state decision-makers, including departments of banking and insurance, health, and Medicaid.
• Educating health plans about the needs of the bleeding disorders community.
• Advocating to your healthcare provider about your unique care needs.
• And so much more.

To get involved with HANJ’s advocacy efforts, contact us »

State & Federal Resources

If you are seeking information on advocacy at the state level, visit:

• The Governor of New Jersey
• New Jersey Legislature and Bill Tracker

If you are seeking information on advocacy at the federal level, visit:

• National Bleeding Disorders Foundation (NBDF) Advocacy
• Find your representative in the U.S. House of Representatives
• Find your U.S. Senators
• The official website for US federal legislative information