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March 27 @ 9:00 am - 4:00 pm
Sunday, March 27, 2022
9 am – 4 pm
iPlay America Indoor Amusement Park
Celebrate Bleeding Awareness Month with HANJ and your fellow community members at this fun and informative event.
👇 Scroll to the end of this page to register
Registration for Community Connections will begin at 9 AM. Please arrive at iPlay at this time for registration and to enjoy breakfast before the programming begins.
Our sponsors have designed these great programs for the day:
Session One 10 AM – 11 AM
Presenter: Kristin P./ Patient Advocate/Caregiver-vWD and Hem A
Topic: Embracing the whole picture: The psychosocial challenges of living with bleeding disorders.
This program is made possible by CSL Behring
Presenter: Claudio Sandoval, MD/Director, Scientific and Medical Affairs – Hematology at Octapharma
Topic: A presentation about pain management and emphasizing the role of Factor 8 and how it eases debilitating chronic pain.
This program is made possible by Octapharma
Presenter: Leslie/VONVENDI Patient Ambassador living with von Willebrand disease
Topic: Leslie, VONVENDI patient ambassador shares her unique Deciding Factor story that inspired her to talk to her healthcare provider about finding a treatment that’s right for her.
This program is made possible by Takeda
Session One 11:15 AM – 12:15 PM
Presenter: Chama Venkat/Patient Advocate- Hemophilia A, world traveler and gifted storyteller
Topic: My Journey to Jivi: In this program you will hear inspiring first-hand stories of the defining moments and milestones that have shaped journeys from all walks of life. Chama Venkat will share his unique story to help those living with hemophilia reflect upon their own journey.
This program is made possible by Bayer
Presenter: Daisy Cortes, MD/Pediatric hematologist/oncologist and Medical Director at the Hemostasis & Thrombosis Center of Nevada
Topic: Apoyo y Comunidad: Obtenga más información sobre cómo la hemofilia afecta a sus seres queridos y comuníquese con otros cuidadores de la comunidad para recibir apoyo e información para lidiar con las responsabilidades de cuidar de una persona con hemofilia.
Este programa es posible gracias a Novo Nordisk
Presenter: Brenda Aldrich RN-BC/ Bleeding Disorder Nurse Educator Northeast
Topic: Nose Bleeds, Mouth Bleeds and Belly Bleeds: What to do with mucous membrane bleeds. A broad overview of various mucous membrane bleeds and management.
This program is made possible by CVS Specialty Pharmacy
After Session Two Programming, we will have lunch – then it is off to enjoy all the activities at iPlay!
In order to receive your iPlay America pass, each attendee aged 16 years or older must attend one program in Session One and one program in Session Two.
HANJ will be hosting a Kids Activity Corner for children who choose not to attend the programming with the adults.
iPlay America is guaranteed fun for the entire family!
Effective immediately, all HANJ events will require proof of full vaccination or a negative PCR test 72 hours prior to the event or program from all attendees 5 years of age or older. However, iPlay America is open to the public during this event and all participants will be subject to their policies during the event. The iPlay America health policy is available by viewing their website: https://www.iplayamerica.com/outdoor-dining-policies-procedures/
Con efecto inmediato, todos los eventos de HANJ requerirán una prueba de vacunación completa o una prueba PCR negativa 72 horas antes del evento o programa de todos los asistentes de 5 años de edad o más. Sin embargo, iPlay America está abierto al público durante este evento y todos los participantes estarán sujetos a sus políticas durante el evento. La política de salud de iPlay America está disponible en su sitio web:https://www.iplayamerica.com/outdoor-dining-policies-procedures/
Community Connections Registratation FormPLEASE REGISTER FOR THE COMMUNITY CONNECTIONS EVENT
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