RESOURCES: Pharmaceutical & Non-Pharmaceutical Resources, plus additional resources, for Bleeding Disorders
Free Factor & Co-Pay/Deductible Assistance Programs

Access Services by Bayer 1-800-288-8374

  • $0 Product Co-pay Program: You may receive up to $20,000 in assistance per year, regardless of income.
  • Free Trial Program: Enroll today for up to one month of free doses of Jivi or Kovaltry. 
  • Gap/Bridge Program: Patients using Jivi or Kovaltry should register for this program should they experience a gap in insurance coverage due to change in employment, or if they experience challenges getting factor while on insurance.
  • Questions: Margarita Llibre Rogers, Hemophilia Community Relations (412) 522-9018 llibrerogers@bayer.com
  • BioMatrix Specialty Infusion Pharmacy – Bleeding Disorder Patient Navigation Program:

Securing access to prescribed therapy, resolving insurance issues, and dealing with medically-related financial burdens, represents some of the health-system challenges faced by members of the bleeding disorder community.

 

  • BioMatrix has assembled a team of experts with years of bleeding disorder-specific experience in insurance processing, social work, and education to help patients successfully resolve health-system, nonclinical barriers to care. These services are offered at no cost and are available to any member of the bleeding disorder community regardless of products, pharmacy affiliation, or insurance coverage
  • To learn more, visit: https://www.biomatrixsprx.com/bleeding-disorders/patient-navigation

 

  • CSL Behring

 

  • CSL Behring Assurance Program: Contact a CSL Behring Assurance Program Care Coordinator at

1-866-415-2164 www.cslbehringassurance.com    

  • CSL Behring Patient Services: 1-844-727-2752 – Helping provide access to therapies for qualified patients who are uninsured or underinsured. We offer reimbursement support, copay assistance if eligible, free trial programs to qualifying new patients and nurse support by phone.
  • CSL Behring’s Center for Patient Support and Resources – This program may provide assistance. Please call 1-(800)-676-4266. https://www.cslbehring.com/patients/support-and-assistance
  • General Questions: Call 1-610-878-4000

CSL Behring, 1020 1st Ave., King of Prussia, PA 19406-0901

 

 

CSL Behring resources continued next page

 

In addition, CSL Behring patients looking for product specific resources can utilize the following contacts:

 

 

  • Genentech – Access Solutions      

For financial Assistance Options | HEMLIBRA® (emicizumab-kxwh) please visit https://www.genentech-access.com/patient/brands/hemlibra/how-we-help-you.html. To speak to a speak with a Case Manager regarding Information related to HEMLIBRA Access and patients inquiring about HEMLIBRA please call HEMLIBRA Access Solution at 877-233-2981

  • The Hemlibra Co-pay Programcan help you with the out-of-pocket costs for your Genentech medicine, if you’re eligible.
    The HEMLIBRA Co-pay Program helps patients with commercial health insurance. This might be a plan you get through your employer or one you purchased through a Health Insurance Marketplace. To qualify, you must also meet other criteria. To enroll visit https://www.hemlibracopay.com/enroll
  • Independent Co-pay Assistance Foundations: If you need help with the co-pay for your Genentech medicine, HEMLIBRA Access Solutions can refer you to an independent co-pay assistance foundation. Independent co-pay assistance foundations help patients with public or commercial health insurance. Call HEMLIBRA Access Solutions at (877) 233-3981 for a referral.
  • Genentech Patient FoundationThe Genentech Patient Foundation gives free Genentech medicine to people who meet income guidelines and:
    • Who do not have health insurance
    • Whose treatment is not covered by health insurance
    • Whose treatment is covered by health insurance and do have an out-of-pocket maximum that is more than 7.5% of their household income

To learn more and to apply for help, visit GenentechPatientFoundation.com or call 888-941-3331 to speak with a Foundation Specialist

 

 

 

 

+

 

  • Grifols

FACTORS FOR HEALTH                                    

1-844-MY-FACTOR (693-2286) MedMonk (The partner that runs the Factors for Health program)

Questions? Support@medmonk.com  

Enroll: Monday through Friday, 8am to 8pm ET by either calling or emailing at support@medmonk.com

 

For those patients who are eligible, it remains a $0 Copay Assistance Program which may cover eligible patients’ out-of-pocket expenses not covered or partially covered by their insurance, with no annual monthly limits. Individual claims exceeding $2000 will be reviewed for network eligibility. Claims that are determined to be in-network will be approved and those determined to be out-of-network may be denied by the program administrator. Grifols covers up to the maximum allowable in-network limits under the Affordable Care Act, which can be found at: https://www.healthcare.gov/glossary/out-of-pocket-maximum-limit/

All of this information can also be found on the ALPHANATE or AlphaNine SD websites for reference.

Factors for Health Hemophilia A Support Program | ALPHANATE®

Patient Assistance (alphaninesd.com)

 

  • HEMA Biologics

For more information about what HEMA Biologics Cares can do for you, go to

or call 855-718-HEMA (4362) and select Option 3.      www.sevenfact.com

HEMA Biologics Cares™ assists patients throughout their SEVENFACT experience. They offer information, resources, and financial assistance programs to support and assist patients.

  • SEVENFACT Co-pay Savings Program – If patients qualify for this program, HEMA

Biologics Cares can help them receive up to $12,000 in savings per calendar year

  • Patient Assistance Program (PAP) – HEMA Biologics recognizes that not everyone has health insurance. The PAP provides SEVENFACT at no cost to patients who meet certain income requirements
  • Quick Start Program – for patients new to therapy who are experiencing an insurance coverage related delay in getting their prescription, HEMA Biologics may be able to provide SEVENFACT to assist in the interim
  • Bridge Program – for existing SEVENFACT patients who are experiencing a delay in getting their prescription due to a change in insurance coverage, HEMA Biologics may be able to provide SEVENFACT to assist in the interim
  • Benefit investigation/coverage determination – HEMA Biologics can help determine patients’ insurance coverage and what benefits they qualify for.

Prior Authorization (PA) support – if insurance requires a PA for SEVENFACT, HEMA Biologics can assist in the process.

     

  • Kedrion                                                   
    mykoate.com                             
    1-855-353-7466

Mykoate.com provides information and support to HCP’s, Patients and caregivers:

  • Co-pay Assistance
  • Reimbursement support
  • Benefit Verification
  • Prior Authorization
  • Clinical Support
  • Nurse Educator

Kedrion Biopharma, Inc.

400 Kelby Street, 11th Floor

Fort Lee, NJ 07024             

Phone: 1-(201) 242-8900

 

  • Medexus Pharma

IXINITY Savings Program

Visit: www.IXINITY.com for more information or this web address directly:  https://www.ixinity.com/support-savings/ixinity-savings-program

 

You may also call 1-855-494-6489 to enroll.

  • Must have a valid prescription for IXINITY
  • Must have commercial insurance
  • No monthly limits unless the total limit is reached.
  • No income requirements
  • Co-pay program can be used retroactively for up to 12 months
  • Limit Total $12,000

 

Free Trial:

The Starter Kit—Your IXperienceTM, on the go, no matter where your next adventure takes you. With your FREE trial of IXINITY®, you will receive one month of free treatment up to 20,000 IU.

After that, if you are covered by commercial insurance, you may continue to pay nothing out-of-pocket for IXINITY regardless of income. Visit www.IXINITY.com for more information

Download and complete the IXINITY FREE TRIAL FORM:  https://www.ixinity.com/starting-ixinity/free-trial-of-ixinity/ and bring it to your doctor to get started.

Questions? Connect with Connect with a Hemophilia Territory Manager: https://www.ixinity.com/starting-ixinity/connect-with-a-hemophilia-territory-manager/

Medexus Pharma continued next page

 

IXINITY® Patient Assistance Program

This program helps deliver treatment to those in need, even if you do not have insurance. If you are uninsured or experience a lapse in your coverage, this program may cover you. Learn more about the IXINITY Patient Assistance Program. Call your IXperience Concierge at 1-855-IXINITY (1-855-494-6489).

  • Novo Nordisk

www.MyNovoSecure.com Novo Nordisk NovoSecure Hotline 1-844-NOVOSEC (1-844-668-6732)

  Novo Nordisk Co-pay Assistance Program – Save up to $15,000 annually on co-pay, deductible, and coinsurance costs, regardless of income.

  Product Assistance Program (PAP)/Trial Program – Download the application at www.mynovosecure.com/support.continue_your_treatment.html

www.novonordisk-us.com

Questions: Point of contact is Kendra Wrisley, Rare Blood Community Liaison:

Direct (703)-798-3610  ~  Cell (703)-935-7355

  • Octapharma

Factor My Way Co-Pay Assistance Program | Factor My Way™   The Factor My Way Assistance Program offers a Co-pay Assistance Program with savings of up to $20,000 (Wilate & Nuwiq), a Free-Trial Program for patients with hemophilia A or VWD, Reimbursement for Octapharma Factor Therapy Treatment and a Compassionate Access Program for no cost therapy for eligible patients.

https://www.pfizerhemophiliasupport.com/             

Pfizer Hemophilia Connect  – One stop source for all Pfizer Hemophilia resources and support programs. Questions: Call 1-844-989-4366  https://www.pfizerhemophiliasupport.com/hemophilia-connect            

  • Trial Prescription Program for Eligible Patients- Allows patients to get a one-time, one-month supply up to 20,000 IU of Pfizer factor product delivered at no cost to him or her. Call Pfizer Hemophilia Connect at 1-844-989-HEMO (4366) or send questions to Pfizer Factor Product Trial Prescription Program, MedVantx, PO Box 5736, Sioux Falls, SD, 57117-5736. For more information or visit the website www.HemophiliaVillage.com 

 

  • Pfizer Hemophilia Connect– 1-(888)-733-2030

 

Pfizer continued next page

 

  • Pfizer Factor Savings Card – Up to $12,000 annual support for co-pay, deductible and coinsurance costs. If you have questions, please call 844-989-4366 or send questions to Pfizer Factor Savings Program, 2250 Perimeter Park Drive, Suite 300, Morrisville, NC 27560, or visit www.HemophiliaVillage.com.

 

  • Pfizer RxPathways – Pfizer Patient Assistance Program (PAP)

A comprehensive assistance program that provides eligible patients with a range of support services. Effective January 1, 2023, patients applying for PAP must meet income eligibility requirements. Patients with commercial insurance coverage are not eligible for PAP. Call Pfizer Hemophilia Connect at 1-866-706-2400 for more information or visit the website at https://www.pfizerrxpathways.com/updates

 

  • If you’re having trouble finding the Pfizer program that’s right for you, call 1-844-989-HEMO (4366) and speak with a Medicine Access Counselor who can work with you to map out your path to prescription assistance.

 

  • Please view Pfizer’s website for the most current resources available.

 

  • Sanofi:

Sanofi Patient Support – Sanofihemassist.com  

Alprolix, Altuviiio, Qfitlia & Eloctate are all under the HemAssist umbrella. For each product community members must enroll in HemAssist which can happen via an enrollment form or through the website.

Financial assistance: Your HemAssist team is committed to finding a way to help. Once you’re enrolled, we will determine which programs you may be eligible for. For information on programs specific to your medication, visit your product page.

Copay Assistance Program*

If you have employer-sponsored or private insurance and you’re having trouble paying for your medication, HemAssist may be able to help through our Copay Assistance Program*. Enroll now.

Patient Assistance Program

HemAssist’s Patient Assistance Program may be available to help eligible patients who are uninsured, underinsured, or experiencing a temporary loss in insurance coverage.  Learn how to enroll

The HemAssist Team:

·                Clinical Educator (CE)

Your Clinical Educator is your point of contact for questions about taking your treatment, living with your disease, and ongoing support.

·                Case Manager

Your Case Manager is available to assist with navigating insurance coverage and identifying available financial support for eligible patients

·                Community Relations and Education Manager (CoRe)

For hemophilia patients only. CoRe’s educate and empowers those within the hemophilia community through one-to-one communication, community events, and conferences.

 

  • Takeda (Formerly Shire): Patient Support & Affordability

Support Centers: “Takeda Patient Support”

Website:  https://www.takedapatientsupport.com/s/

Phone (888) 229-8379 — Mon-Fri 8:30am-8:00pm — Fax: 1-866-467-7740

 

Non-Pharmaceutical Assistance

  • Accessia Health (formerly Patient Services Inc.)

https://accessiahealth.org/patient-programs/

            www.patientservicesinc.org

            Call 1-877-851-9065 

            Email: uneedpsi@uneedpsi.org

            1-(800) 366-7741

            Fax 1-(804) 744-9388

            https://accessiahealth.org/                   

 

 

            PSI.-A.C.C.E.S.S. Legal Hotline (PSI – Patient Services, Inc.)  Supports patients with Social Security Disability and Supplemental Security Income benefits via legal counseling.   https://accessiahealth.org/legal-assistance/

  • Bcares — The Coalition for Hemophilia B’s emergency assistance fund — provides urgent help to individuals or families affected by hemophilia B when faced with specific critical needs. These crisis situations include basic living expenses, housing, and utility bills. Bcares cannot cover medical bills or co-pays. We can provide support when our members are out of work, either because they or their child is hospitalized for a long period of time.

www.hemob.org/financial-assistance

The Coalition for Hemophilia B

880 Third Avenue, 5th Floor

New York, NY 10022

(212) 520-8272

Contact@hemob.org

 

 

  • Colburn Keenan Foundation: is a charitable organization dedicated to improving the health and wellbeing of individuals and families living with chronic inherited bleeding disorders.

 

Campership Program – this program helps families send their children to camps that specifically serve children affected by chronic inherited bleeding disorders.  The application can be obtained on our website.  This program is open and currently accepts applications.

 

Emergency Assistance Grant Program – individuals and families can apply for financial assistance to cover an unexpected bill such as a car repair, appliance repair, high electric bill, etc.  The requested bill must be included with the application.  This program awards up to $750 and applicants are required to have a medical verification form completed. This program is now open, and they will accept applications immediately. This grant is not on their website; contact Colburn-Keenan Foundation directly to inquire and apply.

 

Individual Financial Assistance Grant Program – individuals and families can apply to us for financial assistance, up to $3,000, to meet their urgent medical, basic survival, and quality of life needs.  Due to the large award amounts, this application is quite lengthy, and they do require supporting documentation.  The application can be obtained on their website.  This program is open and currently accepting applications.

https://colkeen.org/charitable-giving-programs-overview/

Colburn-Keenan Foundation, Inc.

PO Box 811

Enfield, CT 06083

Toll free Phone: 800-966-2431                                 Email: admin@colkeen.org

Fax: 888-345-0259                                                     www.colkeen.org

            Susan M. Mantoni, Executive Director

 
  • Hope Charities

Hope Charities: Direct Patient Assistance and Resource Connection

37325 Marketplace Drive 

Suite B

Prairieville, La 70769

888-529-8023

Fax 888-835-1449

info@hope-charities.org

http://www.hopeforhemophilia.org/ (Click under “What we do”)

https://www.hopeforhemophilia.org/applications.html

 

 

 

 

  • National Organization of Rare Diseases (NORD)

An independent 501 (c)(3) nonprofit, NORD is dedicated to individuals with rare diseases and the organizations that serve them. NORD Patient Assistance Programs help patients obtain lifesaving or life-sustaining medication.

 

NORD National Headquarters

120 Longwater Dr., Suite 105

Norwell, MA 02061

Mailing address: 7 Kenosia Ave., Danbury, CT 06810

Phone: (203) 744-0100

Fax: (203) 263-9938

NORD PATIENT HOTLINE: 1-(800)-999-6673

https://rarediseases.org/patient-assistance-programs/

https://rarediseases.org/living-with-a-rare-disease/getting-help-and-support/

https://rarediseases.org/patient-assistance-programs/financial-assistance/

 

 

  • Operation Walk USA

Operation Walk USA, founded in 2011, is an independent medical charitable organization that addresses the needs of uninsured patients in the United States who require a hip or knee replacement surgery.

Phone: (847) 698-1640

Contact: opwalkusa@hip-knee.org

Email: anna.gurevich@hip-knee.org

http://operationwalkusa.org/

http://operationwalkusa.org/about/

http://operationwalkusa.org/patients/

 

  • Patient Access Network Foundation (PAN)

Email: info@panfoundation.org

PO Box 30500

Bethesda, MD 20824

1-866-316-7263

Fax 1-866-316-7261

www.panfoundation.org

 

  • Assistance Programs: PAN Foundation offers nearly 70 disease-specific assistance programs to help patients pay for their out-of-pocket costs, such as deductibles, co-pays and coinsurance, travel expenses and health insurance premiums. Contact PAN by phone or email for more information.

 

** Please note that all co-pay/deductible assistance programs are for patients with private insurance.  Patients with Medicaid or Medicare are not eligible.

Additional Resources

  • 211 United Way: Provides free and confidential information and referrals to local services including housing, food, employment, healthcare, counseling, and more. Check the website of call your local United Way. Links to additional resources in your local area for specific needs:

United Way Worldwide

701 N. Fairfax Street

Alexandria, VA 22314

(703) 836-7112

www.unitedway.org

Dial 2-1-1 or call 1-(877)-652-1148

email: info@NJ211.org

www.nj211.org

https://www.211.org/

 

  • The Assistance Fund: The Assistance Fund (TAF) is an independent charitable assistance foundation that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their co-payment, co-insurance, deductibles and other health-related expenses. Go to their website to confirm eligibility and other resources.

https://tafcares.org

https://enroll.tafcares.org/

Headquarters: The Assistance Fund

8427 Southpark Circle

Orlando, FL 32819

1-855-845-3663

 

  • MAT – Americas Medicines

https://mat.org/

www.americasmedicines.com

Cost-Saving Programs — Medicine Assistance Tool (MAT)

Worried about affording your medicine? MAT is here to help. Americas Medicines connects patients and businesses with manufacturers direct purchase programs and patient assistance resources for more convenient access to medicines.

(571) 350-8643

 

  • Needy Meds: A national non-profit organization that maintains a website of free information on programs that help people who cannot afford medications and other healthcare costs.

Needy Meds, Inc.

PO Box 219

Gloucester, MA 01931

Helpline: 1-800-503-6897

www.needymeds.org

info@needymeds.org

 

  • NJSave—Save on Prescription Costs with NJSave

Division of Aging Services | NJSave Programs

https://nj-dhsas.my.site.com/njsave/PAADGettingStarted?lng=

https://nj.gov/humanservices/doas/services/l-p/njsave/

Seniors and people with disabilities can save on essential expenses like prescription costs and Medicare premiums with NJSave! The application screens for eligibility in over a dozen programs, including PAAD, Senior Gold, and more.

 

How to apply:

 

 

  • New Jersey Children’s System of Care

The State of New Jersey offers behavioral health Resources for Parents and Caregivers through Perform Care.

https://www.performcarenj.org/families/emergency-services.aspx

https://nj.gov/humanservices/dmhas/documents/pdf/MH_Screening_Centers.pdf

1-(877)-652-7624

 

  • Patient Advocate Foundation (PAF): A national non-profit organization which provides case management services and financial aid to Americans with chronic life threatening and debilitating illnesses, including copay assistance.

PAF – https://www.patientadvocate.org/connect-with-services/

421 Butler Farm Road

Hampton, VA 23666

1-(800)-532-5274

www.patientadvocate.org

help@patientadvocate.org

Visit their separate Co-Pay Relief website at www.copays.org

Or call: (866) 512-3861

 

  • RxOutreach: A patient assistance program that provides discounts on prescription drugs. A fully licensed non-profit mail order pharmacy.

www.rxoutreach.org

https://rxoutreach.org/patient-assistance-programs/

questions@rxoutreach.org

1-888-796-1234

From your cell phone: 1-314-222-0472

3171 Riverport Tech Drive

Maryland Heights, MO 63043

 

  • Supplemental Nutrition Assistance Program (SNAP) SNAP is New Jersey’s Supplemental Nutrition Assistance Program. SNAP provides food assistance to families with low incomes to help you buy groceries in most food retail stores and some farmers markets. Eligibility is set by several factors, such as income and resources. Not sure if you are eligible? Visit or click https://www.nj.gov/humanservices/njsnap/apply/eligibility/ to learn more about SNAP eligibility or  https://www.njhelps.gov/ to find out if may be eligible for food assistance (SNAP), cash assistance and more.

New Jersey Department of Human Services: (609) 292-3717

 

  • United Healthcare Children’s Foundation: Provides medical grants to help children gain access to health-related services that are not covered, or not fully covered, by a commercial health insurance plan. You do not need to have United Healthcare to be eligible.

 

UnitedHealthcare Children’s Foundation

MN017-W400

9700 Healthcare Lane

Minnetonka, MN 55343

www.uhccf.org

1-855-698-4223

email: uhccfcustomerservice@uhc.com   

 

  • 988 Suicide and Crisis Lifeline
  • Dial 988 or 1-800-273-8255for the suicide crisis hotline or click:  https://988lifeline.org/ 988 has been designated as the new three-digit dialing code that will route callers to the National Suicide Prevention Lifeline (now known as the 988 Suicide & Crisis Lifeline). When people call, text, or chat 988, they will be connected to trained counselors that are part of the existing Lifeline network. These trained counselors will listen, understand how their problems are affecting them, provide support, and connect them to resources if necessary. The Lifeline provides 24/7 free and confidential support for people during emergencies. The Lifeline also helps specific groups, such as youth, loss survivors, veterans, LGBTQ+, and more, cope with suicidal thoughts.

Other Mental Health Hotlines

You can always call 211 to speak to someone and find local assistance, but there are also dedicated helplines available to anyone in the U.S.

  • Veterans Crisis Line: call 1-800-273-TALK (8255) and press 1; or text 838255
  • Crisis Text Line: text the word ‘Home’ to 741-741
  • The Trevor Lifelinefor LGBTQ Youth: call 1-866-488-7386
  • The Trans Lifeline: call 1-877-565-8860

         2nd Floor Youth Helpline: 1-888-222-2228 (call or text).
            2NDFLOOR is a confidential helpline for New Jersey’s youth that helps find           solutions to problems they face at home, at school, or at play.

 

 

 

            Updated February 9, 2026

 

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