Pharmaceutical Resources

RESOURCES: Pharmaceutical & Non-Pharmaceutical Resources, plus additional resources, for Bleeding Disorders
Free Factor & Co-Pay/Deductible Assistance Programs

Bayer

  • www. Jivi-us.com   www.kovaltry.com   www.livingwithhemophilia.com
  • Access Services by Bayer 1-800-288-8374
  • $0 Product Co-pay Program: You may receive up to $20,000 in assistance per year, regardless of income.
  • Free Trial Program: Enroll today for up to one month of free doses of Jivi or Kovaltry.
  • Loyalty Program: Each month you use Jivi, Kovaltry, or Kogenate FS you will earn 1 Loyalty Program point. Points can be used during a gap in insurance coverage, if you experience challenges getting insurance coverage for your Bayer products, or if you are uninsured or underinsured
  • Questions: Margarita Llibre Rogers, Hemophilia Community Relations (412) 522-9018 llibrerogers@bayer.com

CSL Behring

  • CSL Behring Assurance Program: Contact a CSL Behring Assurance Program Care Coordinator at 1-866-415-2164 cslbehringassurance.com
  • CSL Behring Patient Services: 1-844-727-2752 – Helping provide access to therapies for qualified patients who are uninsured or underinsured. We offer reimbursement support, copay assistance if eligible, free trial programs to qualifying new patients and nurse support by phone.
  • CSL Behring’s Center for Patient Support and Resources – This program may provide assistance. Please call 1-(800)-676-4266. https://www.cslbehring.com/patients/support-and-assistance
  • General Questions: Call 1-610-878-4000 CSL Behring, 1020 1st Ave., King of Prussia, PA 19406-0901

Genentech

  • 1-866-422-2377
  • www.genentech-access.com/hemlibra: Information related to HEMLIBRA Access and patients inquiring about HEMLIBRA (877) 436-3683. www.HEMLIBRA.COM
  • The Hemlibra Co-pay Program helps people with commercial health insurance. This might be a plan you get through your employer or one you purchased through a Health Insurance Marketplace like HealthCare.gov. To qualify, you must also meet other criteria.
  • Independent Co-pay Assistance Foundations: If you need help with the co-pay for your Genentech medicine, HEMLIBRA Access Solutions can refer you to an independent co-pay assistance foundation. Independent co-pay assistance foundations help patients with public or commercial health insurance. Call HEMLIBRA Access Solutions at (877) 233-3981 for a referral.
  • Genentech Patient Foundation gives free Genentech medicine to people who don’t have insurance coverage or who have financial concerns. Visit https://www.hemlibra.com/patient/patient-resources/financial-support.html for more information.

Grifols

  • FACTORS FOR HEALTH
    www.grifolspatientcare.com
  • 1-844-MY-FACTOR (693-2286)
  • Who is eligible? Existing patients (FFH or A8/A9)
  • Any patient who has previously been enrolled in the Factors For Health program
  • Any patient who has previously been on Alphanate or AlphaNine — This info is collected on enrollment forms to determine if they have previously been on A8/A9 treatment.
  • Effective 2023, Grifols is not enrolling new patients (never on the product, never in the program). Please be aware that all patients have to re-enroll in the program each year to continue to receive benefits.
  • The $0 Copay Program, wherein eligible patients or caregivers may pay as little as $0 for prescriptions.
  • The Free Trial Program for eligible patients who are new to treatments from Grifols.
  • Benefits investigation and support services to help you coordinate with your insurer.
  • The Patient Assistance Program (PAP) for patients with no coverage or lapsed coverage.
  • Care Coordination to help you access and stay on treatment.

Hema Biologics

  • www.sevenfact.com
  • For more information about what HEMA Biologics Cares can do for you, go to or call 855-718-HEMA (4362) and select Option 3.
  • HEMA Biologics Cares™ assists patients throughout their SEVENFACT experience. They offer information, resources, and financial assistance programs to support and assist patients.
  • SEVENFACT Co-pay Savings Program – If patients qualify for this program, HEMA Biologics Cares can help them receive up to $12,000 in savings per calendar year
  • Patient Assistance Program (PAP) – HEMA Biologics recognizes that not everyone has health insurance. The PAP provides SEVENFACT at no cost to patients who meet certain income requirements
  • Quick Start Program – for patients new to therapy who are experiencing an insurance coverage related delay in getting their prescription, HEMA Biologics may be able to provide SEVENFACT to assist in the interim
  • Bridge Program – for existing SEVENFACT patients who are experiencing a delay in getting their prescription due to a change in insurance coverage, HEMA Biologics may be able to provide SEVENFACT to assist in the interim
  • Benefit investigation/coverage determination – HEMA Biologics can help determine patients’ insurance coverage and what benefits they qualify for.
  • Prior Authorization (PA) support – if insurance requires a PA for SEVENFACT, HEMA Biologics can assist in the process.

Kedrion

  • mykoate.com
    1-855-353-7466
  • https://www.kedrion.it/en/support-to-communities/
  • https://www.kedrion.us/kedrion-in-the-world/
  • Kedrion Biopharma Reimbursement Assistance
  • The Kedrion Biopharma Customer Service team is available to help patients, families, and healthcare professionals with verifying insurance coverage and benefits for GAMMKED, helping obtain prior authorizations, and with claim denials. Call 1-(855)-353-7466 Ext. 4
  • Kedrion Biopharma, Inc., 400 Kelby Street, 11th Floor, Fort Lee, NJ 07024           1-(201) 242-8900

Medexus Pharma

Novo Nordisk

Octapharma

  • Factor My Way Co-Pay Assistance Program | Factor My Way™ The Factor My Way Assistance Program offers a Co-pay Assistance Program with savings of up to $12,000, a Free-Trial Program for patients with hemophilia A or VWD, Reimbursement for Octapharma Factor Therapy Treatment and a Compassionate Access Program for no cost therapy for eligible patients.
  • Questions? Call the Factor My Way Support Center (855)-498-4260 or email at usreimbursement@octapharma.com

Pfizer

  • hemophiliavillage.com
  • Pfizer Hemophilia Connect  – One stop source for all Pfizer Hemophilia resources and support programs. Questions: Call 1-844-989-4366
  • Trial Prescription Program for Eligible Patients- Allows patients to get a one-time, one-month supply up to 20,000 IU of Pfizer factor product delivered at no cost to him or her. Call Pfizer Hemophilia Connect at 1-844-989-HEMO (4366) or send questions to Pfizer Factor Product Trial Prescription Program, MedVantx, PO Box 5736, Sioux Falls, SD, 57117-5736. For more information or visit the website www.HemophiliaVillage.com
  • Pfizer Factor Savings Card – Up to $12,000 annual support for co-pay, deductible and coinsurance costs. If you have questions, please call 844-989-4366 or send questions to Pfizer Factor Savings Program, 2250 Perimeter Park Drive, Suite 300, Morrisville, NC 27560, or visit www.HemophiliaVillage.com.
  • Pfizer RxPathways –
  • Pfizer Patient Assistance Program (PAP)
  • A comprehensive assistance program that provides eligible patients with a range of support services. Effective January 1, 2023, patients applying for PAP must meet income eligibility requirements. Patients with commercial insurance coverage are not eligible for PAP. Call Pfizer Hemophilia Connect at 1-866-706-2400 for more information or visit the website at https://www.pfizerrxpathways.com/updates
  • If you’re having trouble finding the Pfizer program that’s right for you, call 1-844-989-PATH (7284) and speak with a Medicine Access Counselor who can work with you to map out your path to prescription assistance.

Sanofi:

  • Learn about all the resources, support and financial assistance options available to you at the   following links. Eligible patients need to be a resident of the United States, you do not have to be a  citizen of the United States to receive assistance.
  • Email:  MyEloctateCoordinator@sanofi.com or MyAlprolixCoordinator@sanofi.com
  • Our goal is to help patients get their Sanofi hemophilia medications as smoothly as possible. Support offered through our programs includes:
  • Free 30-day trial for new patients. Medication delivered generally within 1 to 2 days.
  • Help you understand your prescription insurance coverage
  • Yearly savings up to $20,000 on copay and co-insurance costs
  • Easy participation with a completed Patient Services Enrollment Form

Takeda (Formerly Shire):

  • Patient Support & Affordability Resources:
    https://www.hematologysupport.com/copay-assistance/
  • Phone (888) 229-8379 — Mon-Fri 8:30am-8:00pm — Fax: 1-866-467-7740
  • Hematology Support Center:  One-Stop Resource for Hematology Resources (Medical Professionals):
  • https://www.hematologysupportpro.com/   1-888-229-8379 (Prompt 1)
  • Assistance Programs – Available to eligible patients who have a US mailing address with no insurance or a gap in coverage (eligibility and application requirements)
  • Freedom of Choice – Eligible patients can receive free sample dose of eligible Takeda’s hemophilia products along with educational resources.
  • Co-Pay Assistance Program –Non-Financial Needs Based Program (Commercial insurance only)
  • Reimbursement Resources
  • Product Information

Non-Pharmaceutical Assistance

 

  • –A.C.C.E.S.S. Legal Hotline (PSI – Patient Services, Inc.) Supports patients with Social Security Disability and Supplemental Security Income benefits via legal counseling. Call 1-877-851-9065  www.patientservicesinc.org
  • Colburn Keenan Foundation: Provides financial assistance programs to individuals and families living with chronic conditions, with priority placed on those living with bleeding disorders.

Emergency Assistance Grant Program – individuals and families can apply to us for financial assistance to cover an unexpected bill such as a car repair, appliance repair, high electric bill, etc.  The requested bill must be included with the application.  This program awards up to $750 and applicants are required to have a medical verification form completed.  This application is not on our website, and we depend on you to let individuals/families know about it.  I have attached our 2024 application for this program which includes further details and requirements.  This program is now open, and we will accept applications immediately.

Individual Financial Assistance Grant Program – individuals and families can apply to us for financial assistance, up to $3,000, to meet their urgent medical, basic survival, and quality of life needs.  Due to the large award amounts, this application is quite lengthy, and we do require supporting documentation.  The application can be obtained on our website.  This program is open and accepts applications.

Need Help?

  • “Healthy Living Items Assistance” through HFA helps people with bleeding disorders defray the cost of medically necessary items that are not covered by insurance, or even by out-of-pocket payment. This includes wheelchairs, crutches, splints, and even workout equipment to help you live a healthier life!
  • To apply click here.

Hope for Hemophilia: Patient Resource Program and Direct Financial Assistance Program.

National Organization of Rare Diseases (NORD)

  • NORD Patient Assistance Programs help patients obtain life-saving or life-sustaining medication.
  • NORD National Headquarters
  • 1900 Crown Colony Dr., Suite 310
  • Quincy, MA 02169
  • (617) 249-7300
  • Fax (617) 249-7301
  • https://rarediseases.org/about/

Patient Access Network Foundation (PAN)

  • Email: info@panfoundation.org
  • PO Box 30500
  • Bethesda, MD 20824
  • 1-866-316-7263
  • Fax 1-866-316-7261
  • www.panfoundation.org
  • Assistance Programs: PAN Foundation offers nearly 70 disease-specific assistance programs to help patients pay for their out-of-pocket costs, such as deductibles, co-pays and coinsurance, travel expenses and health insurance premiums. Contact PAN by phone or email for more information.
  • ** Please note that all co-pay/deductible assistance programs are for patients with private insurance.  Patients with Medicaid or Medicare are not eligible.

Additional Resources

  • 211 United Way: Provides free and confidential information and referrals to local services including housing, food, employment, healthcare, counseling, and more. Check the website of call your local United Way. Links to additional resources in your local area for specific needs:
  • The Assistance Fund: The Assistance Fund (TAF) is an independent charitable assistance foundation that helps patients and families facing high medical out-of-pocket costs by providing financial assistance for their co-payment, co-insurance, deductibles and other health-related expenses. Go to their website to confirm eligibility and other resources.
  • Health Well Foundation: Slogan: When Health Insurance is not enough. Mission Statement: To reduce financial barriers to care for underinsured patients with chronic or life-altering diseases. 1-(800) 675-8416 Health Well Foundation, PO Box 489, Buckeystown, MD 21717 https://www.healthwellfoundation.org/patients/
  • MAT
    • https://mat.org/
    • Cost-Saving Programs — Medicine Assistance Tool (MAT)
    • Worried about affording your medicine? MAT is here to help.
    • (571) 350-8643
  • Needy Meds: A national non-profit organization that maintains a website of free information on programs that help people who cannot afford medications and other healthcare costs.
    • Needy Meds, Inc.
    • PO Box 219
    • Gloucester, MA 01931
    • Helpline: 1-800-503-6897
    • www.needymeds.org
    • info@needymeds.org
  • New Jersey Children’s System of Care
  • Patient Advocate Foundation (PAF): Provides case management and assistance in accessing health insurance. Co-pay assistance programs are available.
  • RxHope: A web-based information resource to help low-income US residents access patient assistance programs.
  • RxOutreach: A patient assistance program that provides discounts on prescription drugs. A fully licensed non-profit mail order pharmacy.
  • United Healthcare Children’s Foundation: Provides medical grants to help children gain access to health-related services not covered, or not fully covered, by a commercial health insurance plan. You do not need to have United Healthcare to be eligible.
  • 988 Suicide and Crisis Lifeline
    • Dial 988 or 1-800-273-8255 for the 988 Suicide and Crisis Lifeline.  988 has been designated as the new three-digit dialing code that will route callers to the National Suicide Prevention Lifeline (now known as the 988 Suicide & Crisis Lifeline). When people call, text, or chat 988, they will be connected to trained counselors that are part of the existing Lifeline network. These trained counselors will listen, understand how their problems are affecting them, provide support, and connect them to resources if necessary.

Other Mental Health Hotlines

You can always call 211 to speak to someone and find local assistance, but there are also dedicated helplines available to anyone in the U.S.

  • Veterans Crisis Line: call 1-800-273-TALK (8255) and press 1; or text 838255
  • Crisis Text Line: text the word ‘Home’ to 741-741
  • The Trevor Lifeline for LGBTQ Youth: call 1-866-488-7386
  • The Trans Lifeline: call 1-877-565-8860

Updated Jan. 18, 2024

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